tag:blogger.com,1999:blog-19584475.post3517640270144293560..comments2023-08-27T09:42:54.706-05:00Comments on John's Chronic Lymphocytic Leukemia (CLL) Journey: Put the Horse Back in the StableJohn Wagnerhttp://www.blogger.com/profile/17473272053117617993noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-19584475.post-10785939185587307132009-04-28T15:25:00.000-05:002009-04-28T15:25:00.000-05:00Laurie, I don't have your email address and when ...Laurie, I don't have your email address and when I click on your name, it says your profile is private. Please send me an email to jtw890(at sign)aol(dot)com. I didn't put it all together in the normal manner because automatic systems scan for email addresses and then I get a whole bunch of spam.<br /><br />My SLL is in my lymph nodes throughout my body - neck all around, chest, stomach, groin, even behind the knees. I light up like a Christmas tree on a CT Scan. For many folks it is localized in one area, but not mine. I have never heard of it on the tongue before. Doesn't sound pleasant. Has anyone suggested radiation for that one area? <br /><br />Email me and we can discuss it further. I'll try to help as much as I can.John Wagnerhttps://www.blogger.com/profile/17473272053117617993noreply@blogger.comtag:blogger.com,1999:blog-19584475.post-52885377002645368832009-04-28T15:03:00.000-05:002009-04-28T15:03:00.000-05:00John:
I have SLL on the back of my tongue as a sid...John:<br />I have SLL on the back of my tongue as a side effect of CLL, and it is the only thing that causes me any concern. It is painful enough for me to take Tylenol several times a day and I have difficulty swallowing things like tablets, but it has never been treated. I have regular CAT scans to see if it grows, but I still don't understand what it means. You are the first person I have heard of who also has this. but you don't mention where it is and how it affects you. Could you email me and give me more information about SLL and its relationship to CLL?<br /><br />Laurie DillardUnknownhttps://www.blogger.com/profile/12418811902912190108noreply@blogger.comtag:blogger.com,1999:blog-19584475.post-79466423624930698822009-04-28T09:42:00.000-05:002009-04-28T09:42:00.000-05:00Rejoicing with you, John, over your improved lab r...Rejoicing with you, John, over your improved lab results. Take a deep breath, utter words of praise, and LIVE LIFE FULLY. He has you cradled in His arms.Anonymousnoreply@blogger.com